We are watching platelets more than anything right now - his white and red counts are hanging in, we just have to wait to finish the anitbiotics for the infections, pnuemonia, etc and give them some time to get come back on their own without all this extra work to do. We also don't have comparative numbers from last year ( we were already on our way home!)
We have tomorrow off from the clinic (which concerns me because that is always how trips to the hospital start - so let's all cross our fingers that this will go well). Todays platelet count is 10 down 2 from yesterday. The plan is that unless there is a huge increase in the platelet count, on Friday we will be giving Jack platelets (more finger crossing!! and then they are going to remove his central port. It has served it's purpose well at this point and we do not want to leave it in to chance an infection in that.
We just got back from lunch at Whiskeys - Jack even had a meal out of the apartment or hospital. His horizon's are starting to expand a little.
Later we are taking a field trip to take Blakely to the airport - it was nice having her here to help interpret what it is that Jack seems to need at any particular second. I am sure that he will notice the service quality drop that he will experience tomorrow!! He needs to be brought back a little at a time to real life!!
We have tomorrow off from the clinic (which concerns me because that is always how trips to the hospital start - so let's all cross our fingers that this will go well). Todays platelet count is 10 down 2 from yesterday. The plan is that unless there is a huge increase in the platelet count, on Friday we will be giving Jack platelets (more finger crossing!! and then they are going to remove his central port. It has served it's purpose well at this point and we do not want to leave it in to chance an infection in that.
We just got back from lunch at Whiskeys - Jack even had a meal out of the apartment or hospital. His horizon's are starting to expand a little.
Later we are taking a field trip to take Blakely to the airport - it was nice having her here to help interpret what it is that Jack seems to need at any particular second. I am sure that he will notice the service quality drop that he will experience tomorrow!! He needs to be brought back a little at a time to real life!!
Blakely feels that it is time to prove that I am actually still here taking care of Jack - it can be challenging sometimes but the weather also discourages me from walking out the door and following the street towards the sunset!!
5 comments:
I Love You Guys!!!! May God continue to bless you in very obvious ways. We Pray (in Jesus name) every day. Cami and Tedmon
I love you Daddy. No fair, i wanted to visit :) Well we know that God is in our favor and everyone is working good.
Hi Jack and Cheryl,
Wow..what a great looking family. Good job on the O2. (you're wearing your cannula.) I'm so glad to see you up and out and about. It was so nice of Blakely to take the time to come up there. I know it was a big help to you Cheryl. Aren't daughters
GREAT!
Our heavenly Father, we pray for platelets for Jack at this time. We ask for total remission from this Amyloidosis. Please bless our family with health, stability, and happiness. This we humbly ask in Jesus' name. Amen.
Love,
Mary
Cher....it looks like you have lost some significant weight...If that is some sort of new diet plan, then I am not gonna join.
Jack ...you look pretty good for someone who has been thru so much. Glad to hear you got out a little.
The flowers are blooming here so it will be really pretty by the time you get back......THINK SPRING!
We are always praying for you and know the Lord will be faithful. We love you and miss you guys.
Sue & Terry
Jack:
I see your clever plan...Lure beautiful women to your Boston lair and have them serve you night and day!!!! YOU ARE A GENIUS!!!!
It was great to hear from you, and I offer a big "AMEN" to Mary's prayer... (I don't think I have ever prayed for a platelet before, but I am sure GOD has some for you)
Bless you both, and know your are missed!
Terry
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